I call this the 80's work out photo shoot. I love dressing her. Love love love it. And since she throws up a lot, I have more opportunities to dress her. That's me making lemonade out of lemons. During the last month Davy has made some progress.
* she is growing like weed. She is 11 pounds 11 ounces and 21 1/2 inches.
* as of Saturday she started laughing. I only heard it over the phone. It sounded so cute, I was a little jealous I wasn't there to see it. Unfortunately she hasn't done it since. She keeps teasing me with a big smile and then... nothing.
* we have been working on bottle feeding. She needs to eat 130ml and she has gotten up to 60mls. She is kinda sporadic with it. Some days she does better then others. But there has been progress. She gets tuckered out pretty easy, so we only try it once or twice a day. And no longer then a half an hour. Anymore then that and she is burning to many calories.
* she is down to 6 medications a day. This may seem silly but Scott and I were stoked. It was given every 6 hours, so it's helping our schedule get a little bit easier. Really at this point, we will take what we can get.
* She loves to be sang to. She doesn't even mind my ugly old voice. But I can tell she prefers Daddy. I can't blame her on that one, I sing like a goat.
* she loves to push her tongue through her cleft. I wonder if it feels good?
* she loves being outside. I think she's been feeling a little couped up lately, so we've been taking her out for a stroll or two. The girl has gotta get her vitamin D, right?
* she has started the stare at her hand thing. You know what I mean right? It's like the most fascinating thing to her.
Every time she hits a "normal" baby milestone I get teary eyed. It makes me hopeful for her future. Like maybe everything is going to be OK with her.
Once again my talented mother made her the headband.
23 comments:
Hi, Ruth. It is nice to meet you and the adorable Davy. That headband looks so cute! It is awesome that she is making progress on all fronts. I have a little boy who had a stroke at birth, and he was very delayed. When I'd get caught up in how behind he was our neurologist would say, "As long as he's making progress, that's what matters most." And I tried to hard to think about that.
I used to do photo shoots with my son when he was young too. It gave me a lot of comfort to dress him up in cute clothes, prop him up with pillows and take a million photos! That was therapy for ME!
OK, see you again.
Found your blog through cjane! Looking forward to reading more about your wonderful family!
PS Where did you get that precious baby shirt, if you don't mind my asking?
She is so adorable! I want to pick her up and love on her. Her eyes get me every time. Yay for growing and only 6 meds to take!
Just darling! would you mind sharing your source for that adorable outfit?!
She is so darling!!!!!
she is stinkin cute! i love the outfit, and seriously, that HEADBAND! maybe the cutest headband i've ever seen...have your mom come and teach how to make those at enrichment or something, and invite me! haha. oh, and your part about singing like a goat totally made me laugh out loud! so excited to hear about her new milestones...sooo awesome!
I am so happy to hear all that has been happening for sweet Davy girl. Her sweet face just makes me smile!
The outfit was a gift from a friend. She said she got it at H&M.
she looks like she's lovin being outside on the grass. love the closeup of her smiling. that's so nice that her schedule's getting a little easier, definitely a bonus. congrats on 3 months davy!
I love your blog! CJane blogged that you were her new favorite blog, so I just had to check it out.
Your daughter is beautiful and she picked a great MOM to spend her life with. I had to laugh at your post on "doctors". My daughter was born with Achondroplasia (long word for a short person) and you brought back alot of memories with that post. She is 14 now and I hope I never have to see another doctor in this lifetime, seriously.
My dwarf has brought more JOY to my life than I could ever have imagined and more stares from people than I could have ever imagined. After 14 years, I am still dealing with my emotions on the staring. Somedays,I just want to yell, "Stop staring!" and somedays, it doesn't even bother me. I am surrounded by a beautiful family who has loved us through all of it.
I look forward to reading your blog and your journey with Davy.
Hugs,
Petie
I'm loving your blog. Little Davy is so precious. You take amazing pictures, by the way.
found you through CJANE... hope you don't mind.. but i think i'm here to stay!!!
and what a sweet, beautiful baby you have... what preciousness!!!
btw- i too was born with a cleft pallet (bilateral.. right down the middle)... cannot wait to hear more of sweet davy!!!
I came to visit from C Jane but I hope you don't mind I think I am going to stay awhile. Your strength is inspiring.
had to come back.. i became interested the more i read here.. so i plundered in your archives a bit... and i wanted to say that i think God blessed davy with AWESOME parents... who'll take care of her.. and love her with all they have....
one thing with me growing up (and i'm sure you've heard from a MILLION different cleft pallet adults)... but my parents NEVER treated me any different than my siblings or such... as a child i would wake and forget i had a cleft, heck.. these days i do forget... lol...
may God bless all of your souls.. the amazing grace ya'll show is wonderful!!
When you said the thing about the "80's", it got me thinking of Olivia Newton John, and her song 'Let's get physical!' Her little head band is just darling. All Davy needs now are some little baby leg-warmers! That would be awesome!
I'm in love with her and her wardrobe.
Stylin Davy girl.
WHERE did you get that outfit?? i better have a girl next. and i can't wait to hear her laugh.
I can't wait to hear that giggle again : )
i love davy. me dressing up my little pip is also my lemonade. i love lemonade.
She is beautiful! I love her outfit - and love that song. I sing it to Soraya all the time. :)Soraya loved pushing her tongue through her cleft too...I miss that! :(
comin over from cjane.
what an adorable family you have!
where did you find the onesie in this photo shoot? it's sooo stinkin cute!
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