Tonight we took the boys out for pizza to celebrate the last day of school. We found a very empty pizza joint, apparently no one likes round table any more. But it was good for us cuz we could bring Davy on her first night out on the town. And not to mention our little terror of a 2 year old, stinky. He tore that place up. Anyways we had a good time talking about their school year. I don't know how we got on the subject of girls, but we did. I was telling them how they are not allowed to date until they're 16. In fact they are not allowed to even kiss a girl tell they are 16. I looked over at Ollie and he had a huge smirk on his face and he said, " too late." (whaaaat) And no he was not talking about me or Davy.
It was someone else and he has kissed her twice!(dun dun duh)
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.