This is just our basic Davy schedule. This doesn't include any doctors appointments or hour long phone calls to insurance or case managers. Just her daily needs. She is on 7 different meds that need to be given 2-3 times daily.*******************************************************************************************
7am- 2 meds thru g tube
9am- 3 meds thru gtube. pump milk. Start feed thru our kangaroo joey into gtube. Then clean machine.
1pm- crush half a pill, dilute with water put in tube along with another med. pump. start feed . then clean machine.
5pm-3 meds, pump, feed. clean
7pm- 2 meds
9pm- give Davy her shot. pump. start the all night continuous feed in the joey
1am- 4 meds. pump. add to her feed
5am- pump. add to feed.
then at 7am we end continuous feed and start all over again. Isn't life grand!
15 comments:
this is such a gorgeous picture of her!!! she is in such good hands.
I'm so glad she's home now. I bet you are, too. God bless your family.
thanks for that! It was fun to read "in the life of Ruth"
i LOVE that picture of her! that look on her face is so sweet. it totally says "i trust you with all this crap you have to do for me. and i love you for it." i totally bet she's thinking that.
LOL....I was going to put exactly what LarsenParty 24/7 put.....her picture says that she trust you thru all of this "stuff" you have to do for her. Big hugs to everyone.
All I can say (and think) is WOW. You are doing a great job with all of that and being a mom of 4. I can't imagine doing all of that and trying to keep sane. I hope you have a lot of help until it gets to be so routine that you just know you CAN do it all, and then some. You are actually an inspiration to me, and I bet some other people too. Thank you (again) for posting all of this. I know it really helps me get through the time of life I'm going through right now.
Oh. My. Gosh. I am tired just reading the schedule. This won't last forever. You are awesome for continuing to pump. Seriously. I didn't make it as long as you have. Even though it might feel like you are treading water and just trying to survive, you are doing a fantastic job. Archer had just turned 3 when Della arrived on the scene and it was hard to help him understand, I can't imagine doing this with a 2 year old! Someday he will understand. I am sure that "someday" can't get there soon enough for you!
BTW-This is a really beautiful picture of Davy.
Doesnt sound so bad!
Gorgeous eyes. Like I have said before, they are electric.
I was wondering if you were going to post what your schedule is with her. Fascinating. When will she not have to be fed through a G tube?
Hi! My mom totally linked me to your blog. I love hearing about little Davy! After seeing that schedule, I just had to send you this link. I hope you have a hands free pump, but if you don't, I used this with my regular medela pump so I could actually get SOMETHING done. I graded papers while I was pumping while my school kids were at recess.
http://www.easyexpressionproducts.com/
Hugs!
Maureen (Rowland) Goepfert
I love this picture of Davy...what an Angel you have living with you.
I had no idea how intense this schedule was until I came to learn how to feed her and give her medications today. I only helped through 1 feeding...it is definitely a full time job. But one smile from your Angel and you know it is all worth it.
oh wow- more intense it seems than the day you brought her home. I see you added the shot. That is great news. I think we need to do a harper schedule and a ruth's laundry schedule. For reals. I am just finishing up mine and thinking about how much time it takes to fold it all and that is just for four people.
That picture is SO adorable. I want to take her out of the screen and hold and love on her!! I can't believe all that you have to do each day on top of taking care of 3 boys. You are a wonder woman!
amber, you are joking, right? i was over there for less than 2 minutes while my mom was getting a lesson in davy's medication & food administration and i was getting anxiety just trying to take it all in. feeding tubes. air bubbles in her belly. machines. needles. and keeping everything sterile WITH three other children. i don't know how you do everything ruth. i admire it.
How do you take your kids to school? Cook dinner? Laundry? Take a shower?
You take the term "busy mom" to a new level.
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