We really almost forgot our anniversary today.I guess we have been a little busy. It's been 16 years for Harryand I. And I couldn't think of anyone else that I would want by my side through this. I love you has a whole new meaning now. Happy Anniversary Sir Scott.
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
3 comments:
Happy anniversary! Davy is so lucky to have you guys as parents. You guys are amazing. I love reading about her progress.
that picture is adorable! i love your matching hospital badges. happy anniversary!!
Sometimes in life, its the hardest times that bond us the most. Happy Anniversary to a really great couple!
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