there it is. A full body smile.
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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- Hey June
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13 comments:
Melt my heart!!!
I love how her eyes smile first in the second picture and then in the full blown picture her eyes are almost closed she is so happy. I would love to be that happy that my smile would be so big it would squintch my eyes closed
She is irresistible. Cant wait to see her tomorrow! Also- your Anniversary post was really neat. You and Scott are amazing- individually and together.
OH MY GOSH.....Its so true, a full body smile. Her smile is infectious! You can't help smile when you see her smile. Beautiful!
Aww, that is so stinking adorable!!!
Oh my goodness. I can't believe you got that on camera! I love her.
I love her!
Ruth, oh my goodness!! She bring tears of happiness. To think of all that she has to go through on a daily basis, she is a blessing to us all!!
I can almost HEAR the little squeals that went along with that full-body smile. Sweet.
Possibly the happiest baby I have ever seen :D
she is really cute ruth!
Just awesome! If we could only bottle that happiness, thank you for sharing!
I really want to come over for real! I haven't seen you in forever and it would be fun to meet the kiddos! How can I get a hold of you?
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