Sunday, June 22, 2008

EB

My sister Terri has a close friend who's son has a disease called Eb(This is the shortened name)
Not many people Know much about it. It's such a terrible terrible thing. Terri is actually his school aid. Anyways A photographer came in and took these pics of him and this story was written about him here. They are really close to a cure. I just really couldn't imagine what this little boy has to endure. Please watch it.

10 comments:

ruth said...

Colt if you read this, They heard Ollie saying the Argyle the octopus story. They loved it cuz it could have been a story about living with EB. Who knew?

cJb said...

http://www.ebkids.org/

is another link with Garret on the front page. It has a link to make donations to help the family out too.

Katie Schultz said...

how this is so moving. Your little nephew is a strong guy with an even stronger mom. Thanks for opening my eyes to EB. I will say a thank you prayer that my family and I are heathy.

heather said...

I can't believe how big Garret is getting! Last time I saw him he was like Ollie's age. Next time I hear "Argyle the Octopus" it's going to have a whole new meaning.

Okamoto Family said...

Hey Ruth, I thought you might get a kick out of this. Check it out!
craftyiscool.etsy.com

tracyjax said...

Wow I had no idea about this...hope they find the cure! Cute kid! I posted my salon info on my page...

Christy said...

I remember him when he was first born and I went with you to visit Terri. Gosh, it still affects me deeply as much as when I first heard about it. makes me appreciate and stop complaining about my own life. I can't even imagine.

Crystal said...

Wow...that poor kid, that must be so difficult. I dont really know what to say.

Lisa said...
This comment has been removed by the author.
Lisa said...

I see that the Argyle the Octopus story is mentioned on here. It is a beautiful story that I heard on Yo Gabba Gabba. It's very touching, especially when living with EB. I was wondering if anyone had the story written down or could post a copy of it. I can't find it anywhere. Thank you.