Thanks to my friend Lance I was able to see Flight of the Conchords perform at Amoeba yesterday.It was a really good and funny show. I have a wee crush on Jemaine so I was giddy like a school girl. And I haven't been to LA in ....forever. So just being in LA in the daytime made me happy. Originally Heather and Ryan were going to come with us, but Heathers water broke and she had a baby instead. They named her Wendy Louise(after me!). She is 8pounds 2 ounces and REALLY cute. If you want to see more about her check out my sister Beth's blog.
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
Thanks to my friend Lance I was able to see Flight of the Conchords perform at Amoeba yesterday. It was a really good and funny show. I have a wee crush on Jemaine so I was giddy like a school girl. And I haven't been to LA in ....forever. So just being in LA in the daytime made me happy. Originally Heather and Ryan were going to come with us, but Heathers water broke and she had a baby instead. They named her Wendy Louise(after me!). She is 8pounds 2 ounces and REALLY cute. If you want to see more about her check out my sister Beth's blog.
4 comments:
Oh wow that must have been an amazing show. I feel the Louise connection. Great picture of Heather and her beautiful baby.
What a great picture of Heather & Wendy. Two beautiful girls! Congrats!!!!!
argh. I wanted to go to that show soooo bad. But Yeah!!! for Heather and Ryan! Send them our congrats when you see them.
-Kenny and Jill
so how does it feel to be a great-aunt?
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