the mom: Harpers first Easter

Sunday, March 23, 2008

Harpers first Easter

(I couldn't rotate these sorry)

Today is Easter. It's Harpers first one. And I have to say I think he really enjoyed himself. Mommy and him had an amazing nap together. And I'm sure he was drinking chocolate milk thanks to all the cadbury eggs I ate. Today was Ollies Actual Birthday. I guess easter will not fall on this day for another hundred years or so.

1 comment:

Christy said...: So cute. He looks so much like scott. You should post a picture of scott so we can compare!; March 25, 2008 at 5:20 PM

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Davy's medical History

I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.

Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.