A month ago Today......
This is when the epidural stopped working and the prayers started.
I am so thankful that my little girl is here.
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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April
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- Not the best news
- Good news!!!
- Remember him?
- What's wrong with this picture?
- one month
- March 20, 2010
- Thank You Ms. Lyon
- Prayers work
- When Max & Ollie met Davy
- A step in the right direction
- Surgery #1
- Happy 6th Birthday Ollie! (march 24th)
- two weeks in the NICU
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13 comments:
Thank you so much for posting these pics. You can feel all the emotion when you look at them. She really is a fantastic photographer. I want to see all the pics!
WOW, Ruth!!!! These are AMAZING!!!! I've always told shane that I want amelia to take our pictures, but she doesn't really know me... lol!!!! But I think that you have some of the best pictures that truly captured your emotions. It really made me cry... but that might be all my pregnancy hormones... haha jk!!!! I want to see all, I mean ALL of it. They are soooo good and you are soooo beautiful... Shane and I love you soooo much and I look up to you in many ways... Thanks for sharing!!!
so amazing! my favorite is the pic of you and scott looking down at little davy. so sweet. good job amelia!
sidenote: love your birthing top...it's the same fabric i used for my kitchen curtains.:)
I'm with Christine, hormones and the beautiful pics have me crying...again. The phrase "This is when the epidural stopped working" is enough in itself to get my tears going :)
xoxo
beautiful.
i totally teared up. thanks for sharing such a beautiful day ruth!
The pictures are so beautiful Ruth! I love the one where you are holding Davy up to your chest, and she has one eye peeking open. Just darling! I am so happy she is here, too! Continuing to keep you in my prayers!
The photos are so touching and I'm so glad you posted them. I just love Davy--she is quite amazing. So are you guys. One of my friends posted a comment on my blog about Alta creating opportunities for people around her to be amazing, and I can already tell that Davy is having that impact on you guys (not that you weren't awesome/amazing before).
The photos are so touching and I'm so glad you posted them. I just love Davy--she is quite amazing. So are you guys. One of my friends posted a comment on my blog about Alta creating opportunities for people around her to be amazing, and I can already tell that Davy is having that impact on you guys (not that you weren't awesome/amazing before).
So Presious! I want to see them all please...
Oh...I forgot to mention, you look way to amazing to be in Labor!
These are the most beautiful pictures! Thank you soo much for sharing such a tender moment! You, Scott, Davy, and your boys are in my thoughts and prayers a lot!
Tears. Loved these so much. Hugs to you and that sweet girl.
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