Yesterday was a crap day. Davy girl had a heart echo, it showed that her left artery is starting to thin. Once again things could be worse, but it would be nice to not have any of this at all. So for now things don't change that much. Just some more echos and they might put a balloon in her artery. The PDA and VSD are the same, not bigger not smaller. We are still shooting to fix everything at about 12 months. After our lovely cardio appointment I strolled on down to Davy's GI 's office. I needed to raise some heck. Davy has been out of one of her meds for a couple of days and not one person from that office can return a phone call. Seriously I even broke down crying on one message. So I walked in and demanded to be heard(take that GI!) 2 hours later........ I got Davy's prescription. By this point Davy was due to eat...so another traffic filled drive home on the 57 freeway with a crying baby. All I could think about was how nice it would be to take a hot bath and read why Jake broke up with Vienna.
I got home, fed Davy, tended to my other offspring and our electricity goes out. In fact over half our town 's electricity went out. I didn't think much of it at first, but then I realized joey doesn't have much battery life and Davy needs to start her all night continuous feed in a half an hour(time flies huh). OK, now what. Do we need to set up camp at my sisters house,buy a generator? Luckily after 30 minutes it came back on. But, wow it made me realize that I need to have an emergency plan....like now. I can't wait for disaster to strike. Scott and I definitely have to get some sort of game plan. Anyone have advice on how to be prepared for emergencies when you have a baby with special needs? I would love to hear some advice.
I will say my day ended on a good note. I saw a certain movie about a certain vampire with a bunch of lovely ladies.
Nothing like drowning your sorrows in a tub of popcorn and Diet coke.
P.s In case your wondering about Davys clothes. I've been revamping some of my boys old shirts to make them lady like for Davy. What do you think?