Awesome
Scott
He speaks to my soul. We are one.
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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8 comments:
oh my...
And that right there is your inspiration for this Halloween.
Please please please.
But hot damn, I won't be at the family Halloween party. Boo.
The kids face is FREAKY!!!!
This canNOT be real! And totally am not surprised Scott sent that to you. Love that guy. I'll be laughing for days about this one.
at first i thought that guy was will forte from snl, but then i looked a little closer! i can't believe that's REAL!
i swear ryan & i saw a kid with a mullet that bad at a taco bell on the way to newman last week.
i think harper told me he wants that haircut.
hahaha i can't tell if the kid is a boy or a girl...paul sends me funny emails from work, too i love it.
that kid could be a young c.kendig. i am sure that i have seen pictures of him. ( i can't tell if it is a boy or a girl)
I'm a little jealous...he is so romantic
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