wait for it......

wait for it.............

there it is. A full body smile.

We almost forgot

We really almost forgot our anniversary today. I guess we have been a little busy. It's been 16 years for Harry and I. And I couldn't think of anyone else that I would want by my side through this. I love you has a whole new meaning now. Happy Anniversary Sir Scott.

our daily schedule

This is just our basic Davy schedule. This doesn't include any doctors appointments or hour long phone calls to insurance or case managers. Just her daily needs. She is on 7 different meds that need to be given 2-3 times daily.

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7am- 2 meds thru g tube

9am- 3 meds thru gtube. pump milk. Start feed thru our kangaroo joey into gtube. Then clean machine.

1pm- crush half a pill, dilute with water put in tube along with another med. pump. start feed . then clean machine.

5pm-3 meds, pump, feed. clean

7pm- 2 meds

9pm- give Davy her shot. pump. start the all night continuous feed in the joey

1am- 4 meds. pump. add to her feed

5am- pump. add to feed.

then at 7am we end continuous feed and start all over again. Isn't life grand!

how does that saying go?

There's no use crying over spilt milk? Whoever thought of that little saying wasn't pumping milk from their lady lumps every 3 hours for their sick newborn. They also probably weren't losing their milk supply due too lack of sleep and stress. They definitely didn't have a crazy 2 year old that as soon as he sees you pumping decides it's the perfect time to wrestle mommy, thus spilling the liquid gold all over the bed. I am sorry, I will be crying over every single drop of spilt milk.

when Harper met Davy

I have to admit I was a little nervous about how this was gonna go down. You never know with Harper, he is a little bipolar. We have been showing Harper pictures and talking about baby sister to prep him, but how much does a 2 year old really understand? When we brought him in to her he got a really big smile on his face and said" baby sister, baby sister." Then he said" Owie. baby sisters got owie's on her nose." All in all it went well. He isn't acting out any more then he usually does, unfortunately that's not saying much.

Ollie and Davy

Ollie was probably the most excited for Davy to come home. This was the very first time he got to hold his little sister. He is always willing to help her. The other day he was watching her monitor and he noticed her blanket moved and covered her face. I asked him if he would mind moving it down for me. He jumped up and in a high girly song voice said, "only because I Loooooove her." then i watched on the monitor as he put his hand on her and said, "don't worry little sister, I'm here, I'll help you." It got me all warm and fuzzy inside.

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Last week Ollie's Teacher brought us the most amazing dinner. No really, she even printed a menu. It was the nicest thing ever. I am constantly amazed by the outpouring of love and service that my family has received. I came home from the hospital to the full spread on the table and Ollie said............

Ollie- Mom, do you think this is a dream or real?

Me- Hmmm I don't know.

Ollie- MOM, It's NOT a dream! Mrs. Spillet-Maurer knows where we LIIIIIIVE!!!!!

It probably was the best thing that has ever happened to him. He couldn't stop talking about it.

welcome home Davy

She's home. There were no tearful hugs goodbye, It was more like a C-YA. I felt like I was about to ride on a big roller coaster, scared and excited all at the same time. Luckily I have the best partner in the world. Scott has been amazing. He has been able to retain all that's been told to us by the Doctors, he's helped work on a Meds/feed/pump schedule for me and through it all he has been calm. I admit i kinda lost it the first night, not the curl up in the fetal position lose it, more like the stare out the window and cry kind. But he has been a rock, my rock. So the first couple of days? I would say it's been the hardest thing I have done......ever. But before you give me the positive "you can do it Ruth speech", I know this is the first couple of days and eventually this will become "my" normal, I know this.