To say this week has been hard is an understatement. Instead of Davy getting progressively better each day, I would say she got progressively worse. By Friday we only had one dose left of Davy's Tylenol with codeine and I started stressing. So I called Dr. J and told him what was going on. He advised me to try using ibuprofen with regular Tylenol first and if it wasn't enough then to call him. He also told me that he was not surprised by her still being in a lot of pain, because her surgery was not your average clefty repair. Poor Davy, she was just miserable. There were only two things we could do to distract her. One was taking her for a walk. I have walked her all over town....twice. And when I couldn't walk anymore, Scott did. Then we walked together, until finally Davy decided she no longer was distracted. It felt like I walked a marathon on saturday.
The other thing that would distract Davy was, funny enough, Yo gabba. We could get a good ten minutes of no crying from it. And when your baby is crying all day ten minutes is a gift. I told Scott that he needed to pat himself on the back for a job well done. Then I sent a message to Lance telling him he was an angel straight from heaven for making Davy happy today.
Tomorrow morning we are going back to Choc to have Davy's sutures removed. It's pretty much a mini surgery. So tonight we start the process all over again. No milk past 2am, wake up at 5am, fill out paper work, watch the nurses try to put an Iv in and have her be put under anesthesia. But this time I think I will be able to sleep in the waiting room, cuz man.........I'm exhausted.
30 comments:
You guys are doing such a wonderful job taking care of that little girl. Hang in there Momma.
(((hugs))) SUCH a hard job! It really is a marathon not a sprint!
I don't understand how I can feel such love for a child over the internet. I think it is because she looks like my Cora (7.5 months). You guys are doing great and I'll keep praying for you.
Mindy from WA
at least your hair will look good! Good Luck..Ill be thinking about you... Its funny that i was super busy this weekend but i managed to see a lot of you...I liked it.
Good luck tomorrow! I'd send you a nap if I could. We're calling this month Craptober at our house. My son underwent his repair on Oct. 12 and tomorrow following his appt. I burn the no-nos!
good luck! I hope the crying stops. that's hard enough with a newborn.
any source on that cute purple headband?
Hang in there - you are an AMAZING Mom and Kudos to your Hubby for being an AMAZING Dad and Partner. Sending hugs and prayers your way for a quick and speedy recovery, Davy!
Hugs,
Tracy Marie and Family
Wishing for blessings for you and your little one, as well as a few ZZzzzz's! I hope all goes well today!
You have such an incredibly tough job right now. I hope this week is easier on all of you and you can see a light at the end of the tunnel.
Maybe Lance can do an in-person for dear Davy's viewing pleasure :)
Good job, momma. Still praying for you all. Poor Davy. I hope her pain eases soon, and you can all get some sleep!!
EJ, www.thesearemyreasons.blogspot.com
Sending lots of love your way!!!
She is looking terrific! I'm so sorry she's feeling bad. I can't imagine. xoxo! My girl had to go back in for stitched removal and it was so frustrating b/c it wasn't a real surgery but we had to act like it was. ugh...
Oh, and why are they not putting the IV's in after she's out ALL the time. I saw you post about this before and it's really bothering me. The 3 times we have gone in they have always done it after they gassed my daughter. So much less upsetting for everyone. Can you ask them to do it that way? I hope that it will go smoothly and she'll start feeling better soon!
I'm sorry to hear that Davy's still having so much pain. I'm continuing to keep her in my prayers (you and Scott, too). Big hugs Ruth.
Oh my...she looks like her Daddy!!
{{{{hugs}}}}
Oh baby girl feel better soon.
Davy is such a beautiful girl! She is so lucky to have picked you as her parents. Good luck the next little while. Soon she will be able to smile her big smile again.
I can't imagine how hard this is for you all. I hope that she heals quickly, for her sake and yours. How are your boys handling it? Are they staying with someone else for a little while? You and your husband are so amazing, you are doing a wonderful job.
Sending prayers and love <3
aw that first pic with her pouty lip breaks my heart. poor girl, but she looks so cute! i definitely have used yo gabba as well to make penny stop crying at times, ha! davy is gonna love you guys so much when she reads back these posts. hope the little suture surgery goes well!
She is truly beautiful and you are amazing! I'm praying she'll be comfortable soon! Good luck with her appointment!
Poor baby! I wish I could love on her and her pain would go away!
ok, so she was darling with the cleft lip, but man is she a beauty now! even with the stitches! sorry she's hurting, but hope it all gets better soon. she totally looks like her daddy! get some rest maybe.
I haven't commented before, but figured I better start because I always love your posts, and always want to comment!
I'm from Canada and have been reading your blog for a few months. I love the way your write, and your creativity in EVERYTHING you do is amazing: your photos, your style, and Davy's clothes - to name a few. Anyways, I'm so sorry that Davy is in so much pain. I hope it heals quickly and that the pain subsides.
Big Love from another Baby Daby fan. Thinking of you guys.
Oh, poor little doll. I hope getting the sutures out helps her pain. And I hope you and Papa get some rest. What amazing parents you are.
A picute is worth a 1000 words...but I think your pictures say it all.
This will be the week we get our Davy girl back.
Scott and you have been amazing! Davy is lucky to have you both.
She's got such a sweet "sick of it all" face...more prayers and happy thoughts your way...
Notes: No-nos were a nightmare. I h.a.t.e. them. We were only able to keep them on by watching him like a hawk and I have a very tattle tale-y two year old. MOM! BABY ERICK IS TAKING OFF HIS BANDAIDS!!!!
The nasal formers were sutured in place for two weeks. Nasal formers = no-nos. Our doc sutures them in place for two weeks and then takes them out. I know a lot of docs have you take them in and out for up to six weeks. Um, no thanks.
Post op he was on antibiotics in the hosp, three doses of decadron, two doses of IV morphine. Then started tylenol with codeine orally. I gave it every four hours routinely for 3 days, then every six for two days, then every 8 for a day and then every twelve for about three days. He was on oral keflex for five days and otoflaxacin ear drops for three days. He had tubes put in at the same time. And he has an obturator that was modified from the nam piece. It functions like a retainer. It's held in place with denture adhesive. Syringe fed for two weeks and moved to the pigeon yesterday.
That's my cleft repair in a nutshell. I'm sorry Davy's not feelin' it. The first week and a half are the hardest. By about day 12-13 it's like you start to get your baby back.
If you have any other questions just lmk. You can leave a comment with an e-mail on my blog if you're comfortable with that. It won't get published. :) Then it wont look like I'm writing a novel in your comments. :)
Sorry she's having a rough time with the pain. You are such great parents to be attentive to relieve her frustration, even if it can only be for 10 minutes at a time. Hopefully the light will appear at the end of your tunnel soon!
I so admire your strength and courage! Seriously, you're so inspiring.
I'm glad Davy is doing better, but I have to say, that first picture of her crying just breaks my heart. She looks so sad. :(
I just read your post from yesterday, and I'm so glad getting her stitches out wasn't a huge ordeal for you guys, especially little Davy.
Oh, what a sweet little angel, I can't believe how much she reminds me of my little cleft angel! Does she have a g-tube? It looked like the tubing of it in her picture. My little girl has one. Good Luck, the first few weeks is the hardest, (besides all of the worry before surgery.) Hang in there, all of you!
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