Wednesday, October 20, 2010
All is well....all is well
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Just quick blog to thank you for all the kind messages. I read all of them while waiting for Davy. They were a great source of comfort. She had prayers coming in from all around the world and everyone of them has been answered. She is home and doing well and I am doing well. I will post way too many pictures, along with a detailed story very soon.
Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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49 comments:
I recently found your blog through CJane, and have been following your blog for a little while now. I have been amazed by your family and your strenght, as well as Davys strength! I have been thinking about her all day and am so glad to hear that her surgery went well! Yay! Yay! YAY!!!
I have been thinking of you (from China to add to your worldwide collection of friends) over the last few days. I am so glad the surgery went well - I can't wait to see Davy's brand new smile!!
Love to you all.
We will continue to keep Davy and your family in our prayers. Glad to hear all is well.
I've been waiting all day for a post! So glad she is home where she can be comfy with her mama!
Thank you for the quick note. What a relief! So glad that life is going well. Blessings!
YIPPEE!!!!!!!!!!!!!!!!!! I welled up when I saw there was a post from you! I am really happy for all of you! I can't wait to see your next post! I'll keep praying!
Wow. I'm surprised she's at home? They didn't keep her over night? Glad to hear things went well. Thank you for keeping us so well updated. We were thinking and praying for her and all of you guys. How are Scott and the boys?
Glad you are all home safe. Praying for her to have a speedy recovery!
Davy has been on my heart a lot this week. Not as much as yours, I'm sure, but still. I have a 7 month old so it all hits very close to home. My prayers are with you, your family, and of course little Davy!
First thing I did this morning was to check in to see if there was an update. Good news indeed. This will be a good day. xx
So glad to hear Davy is HOME with her family...prayers for a speedy recovery and back to smiling!
God bless Davy and your sweet family.
SO happy to hear your beautiful Davy and your family are doing so well.
I wanted to share that my step father and one of my step brothers were born with cleft palate. When my step father was born in 1948 it of course was not as common to take hundreds (or in my case thousands :) of pictures of your little ones. But my grandmother has baby pictures of her other sons and there is none of my step dad. She was embarrassed of his clefty smile. The first time I heard that I could not control my sobbing. It absolutely breaks my heart that my step dad has no photos of him as a baby.
All babies are beautiful and I LOVE that you document Davy's life in such a wonderful way. You and Davy are incredible lucky to have each other in this world.
I wish Davy a quick and healthy recovery from surgery and can not wait to see her new smile!
Glad she came through it! What a change it must be to everyone in your home!
OMG!! I can already see the amazing work through the mask. I can't wait to see more. I'm so glad you are ALL doing well. I'll keep praying for Davy and her healing!!
From what I can see, she looks perfect! I'm so glad it went well!!
that little picture is completely breaking my heart right now. glad everything went well.
I'm so glad everything went well...I've been thinking of you and wondering :)
so so so glad to hear it went well.
can't wait to see her smile again!
-c
I usually don't click out of the comfort of my Reader to comment, but wanted to let you know that I have been a long time blog follower (love your photos! they sucked me in...). Anyway, my true point: I saw the photo in my Reader and my throat got tight. Prayers for you and your beautiful daughter - her big clefty smile always made my heart melt, but this will help her in so many ways as she grows. Thinking of you and your family!
I too found your blog through CJane, and have been visiting for a while. So so so happy to see that the surgery went well. I will continue to pray for a speedy recovery!
i have followed your blog for sometime but never commented. not sure why. your precious davy melts my heart and is in my prayers. glad to hear all is going well & can't wait for more pictures. i often show my family your blog and squeal about what a precious little girl you have! stay strong your little girl is one strong fighter. :)
I am so glad she is HOME! I was happily surprised to read that. Hopefully you can all rest and recover. We sent you a little something in the mail so be on the lookout for it. I started to make Davy something, but it quickly turned into a disaster so I need my mom to help me fix it. We have been praying for Davy and for you and your family. I know it can be stressful for little boys but everything will come out alright.
So happy for the great news!
what happy news on this thursday morning. xoxo
so glad to hear all went well. =)
Praise the Lord!!!
:)
You have no idea how happy I am to read the words:
ALL IS WELL, ALL IS WELL
Continuing to keep you all in my prayers.
A big hug to everyone.
I am so glad to know that she is doing well, along with the rest of you. We have been thinking and praying about her for the past couple days, and it's wonderful to know that all is well <3
Happy news! I have been thinking about you.The mother in me is so relieved! Be sure to give Davy an extra cuddle for me.
I too have found your blog through CJane and have been following for a while. I am sooo happy to hear that the surgery went well and Davy is home already! I have been keeping her and your family in my prayers. Can't wait to see pics! Love from Colorado!!!!
there could never be "too many" pictures of Davy Girl. : )
Found you from Cjane. my prayers are with you and your sweet Davy! She looks great. I am with you though, I am going to miss that big clefty smile! It has been an amazing experience explaining about Davy to my children. Looking forward to the MANY pictures I am sure you will post!
I can faintly see her little lippys, she's so sweet! Glad to hear everything went well.
thanks for the update on davy. i am so glad everyone is home safe and sound.
Yippee :)
i woke up in the middle of the night and realized i hadn't checked in to see how davy's surgery went! so glad all is well. she's a beautiful, graceful little girl. with a great family!
Hooray! Thanks for the update! I woke up this morning thinking about lil Davy and mama bear. Glad to hear you're all doing well!
Hooray! So glad things went so well, can't wait to see more pictures, she's so beautiful! So glad you felt some comfort, lovely!
wow- we are so happy Davy is doing well. I am glad you and Scott also made it through. Can't wait to see pics and see her soon. We'll keep praying for a good recovery- for you and for her. What a remarkable little girl.
I too have been following your blog. I'm so glad that Davy's surgery went well. She is absolutely beautiful.
Glad everything went well. I'll keep you and Davy in my prayers.
So glad she and you are doing well! I've been thinking of her!
soo good to hear! You don't know me..but I follow your story :)
Thanks for letting us come along on this journey with your sweet family!
God bless you and your family! I'm glad everything went well.
Awww.
Sweet sleeping Davy.
I popped back in this week to see how the surgery went.
Congratulations.
(I feel so odd commenting on blogs of people I don't know...anyway...I'm glad everything was a-o-k)
I am so so so happy that everything went well.
I am also blessed to have a "clefty" baby. She is now 6 yrs old and reading your blog has brought back soooo many memories for me. They are such special kids that have to endure so much. Her smile will never look the same, but you will love it just as much! Thank you for sharing your story! Wishing Davy a speedy recovery!
Hey I am really amazed to see your strength,my daughter has 1p36 deletion syndrome so doctor said she will have significant mental and physical challenges ahead,she is only 2 weeks old,she has cleft lip,hole in the heart and dialted ventricles,smaller corpus callosum and smaller cerebellum, strawberry shaped brain...What challenges you had to go through and how did you resolve it?Can you just reply me,I would be really grateful to you, seriously I am glad to find this blog,tons of thanks to you
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