Tuesday, October 5, 2010
Daby
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This is Harper and "Daby" throwing their gang signs. Actually Davy is obsessed with her hands right now. She stares at them for hours. I think Harper was wondering what all the fuss was about and joined in on the action. I am amazed at how gentle he is with her. For those of you who know my Harper, know that gentleness is not his strong suit. But with her he is a different kid. Maybe he can sense how special she is. Or maybe he just knows mommy will freak out big time if he does something naughty to her.
Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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9 comments:
It isn't just by chance that Davy has 3 older brothers. Those boys will be her biggest fans, protectors and supporters.
I bet she loves him so much.
great photo.
I love it when moments are captured forever. This is such a cute photo:)
so cute! i love the look on her face, so happy.
I was SO nervous when I had my baby because of my 2 year old son--was he going to maul him? Jump on him? Crush? Hit? Push? And when we brought the baby home, all he did was kiss him over and over and over, it was awesome! :) Davy's absolutely beautiful.
So cute!!!
Adorable.... I love this pic / post ! They look so much alike, too !
They are both so darling!!!!
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