Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
Contributors
My Homies
- ***BENS BOO-YEAH BLOG***
- Aaron Jones
- Amber Buhrley
- Amelia Lyon
- Beth Lamb
- Cathy and Dale
- Christine and Shane
- Christy Pethel
- Colt
- Colt 2
- colt3
- Crystal Witten
- Emma and Jed
- Erika A
- GEELA
- Heather Schultz
- Heather Williams
- Jana Heller
- Jayd McFerson
- Jen Bartlett
- Jennie and David Lamb
- JILL Bear!
- Jill Brady
- Joey and Cambi
- Julia Knapp
- Julie and Ryan
- julie windes
- Katie Schultz
- Kim Braithwaite
- Kristyn Berrett
- Lana Wren
- Laura Daines
- Melany Larsen
- MY PHOTOGRAPHY BLOG
- Nicole Thompson
- Pat and Michelle Robinson
- Sarah Windes
- The Kendigs
- Tracy Green
- Vanessa Lamb Photography
- Whitney Ingram
- Yo Gabba Gabba
22 comments:
after the rough day I had I needed the smile this picture brought. Thanks for letting me follow you through your journey.
Lindsay Chipman
I love you and will never even get to meet you! I think Davy is cute as can be and your humor thrown into her recovery is AWESOME! I hope you scrapbook because that will make a FAB layout!
Too funny, that is awesome! I think all of you should walk around with tape mustaches, as a sign of support! haha I feel like doing one myself!
So awesome. Davy rocking the stash.
Ok You just made my month! I love it and know you will treasure this picture forever :D
I love it!!!! And she looks so happy!!!
new costume ideas come to mind! Is she not the cutest thing ever!
I came across your blog on C Jane, your daughter is adorable! I am so happy for y'all! And the moustache is classic! Also, thank your husband for me...Yo Gabba helps keep me sane with twins..they are mesmerized :-)
HA HA HA!! That is TOO cute!
I'm sure you hear this a hundred times a day, but that little girl of yours is SO gorgeous!! What a beautiful child.
:) Some of the best ideas come late in the game!
This is EXACTLY what I needed to see today Ruth. OH MY GOSH.....its the cutest picture to date. She is ADORABLE.
AWESOME!
Davy is so stinkin cute, I love following your blog!!!
What a bright little soul. I think we should all wear tape mustaches like people wear "live strong" bracelets. Maybe you have started a trend here Davy!
Your daughter was beautiful before the surgery and she is just as beautiful now. I love the picture of the tape mustache. I don't think I have smiled so much at any picture before. I also love the monthly pictures with the numbers. I started doing that with my baby because it was such a fun idea. God bless you and your wonderful family.
thats amazing! I love it
That made my morning! Thank you.
p.s. Davy looks like she is totally in tune with how awesome the moostachio is. just saying.
Love it!!
Now that made me laugh out loud! thanks. What a cutie! xx
oh your attitude! Package some up and send it to me in a jar please. I'll eat it right up.
GET OUT!!!
she's a living doll...
seriously, LOVE.
hope your precious davy girl is doing good!
Post a Comment