Tuesday, March 17, 2009
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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9 comments:
what is so funny is that those pictures were taken pretty fast and Ollie was able to change his pose each time. Too cute :)
Beth, that's so true! And I love Eliza throwing the peace sign in the first picture AND Rocky did okay through the first two or three but then started to make faces. And Xoe & Xanthe always get the job of holding the babies...for dear life! Remember the "other" Christmas pictures you guys tried to take where all hell broke loose! haha. I love Ollie's transformation from hating pictures to loving them!
The little girl on the end in pink she must have been having a really bad day, too cute! And Ollie is quite the poser!
Where's the picture of ollie ripping his shirt of at the end. That was classic!
While Ollie was hitting some hot poses, I couldn't stop cracking up at the little one in the pink pants on the end. So cute!
I'm proud to call Ollie my cousin! My favorite is the when where he is throwing the peace sign. His face is amazing. Please post more pictures of Ollie's modeling. please.
My favorite is definitely the second one! AND your family pic. That kid is hillarious!
I showed Ainsley these pictures and asked her why she was crying...she literally almost started to cry again, and said, "I really wanted to sit by Liza!" Too bad you didn't get at least ONE picture of her happy! But wow...Ollie is pretty amazing!!
These are the best family kid photos I've ever seen.
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