Instantly her hair went up in FLAMES. Thank heavens for Nancy's fast reflexes. She beat Amber down. While I stood frozen, mouth open. But I still managed to capture this picture.
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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10 comments:
i don't think i would have been any faster. a couple of years ago i almost burned all of my own hair off lighting a barbeque. fire is scary.
Sooo.... is that a real action shot, or is that a pose?
i'm with colt? is that a pose or caught in action? Cuz should I be embarrassed to admit that you are like those "caught on tape" people where it's more important to get the shot than help the guy who just got shot in the crotch with a baseball. :)
and btw, I LOVE the can of #10 Chef-Mate _________...could be beans, canned meat, etc. TOTALLY Schultz house...Harry Schultz decoration.
That is so funny! She is so lucky she did not have a lot of product in her hair. It could of been a lot worse!
that was awesome.
I do the same thing! I freeze and stare. It's like I have to process it first it. Why!?
Mental note to self.......make sure to NOT hurt myself when hangin with Ruth!!!!
uh, could have done without the double chin shot! Maybe I shouldnt have had 3 slices of cake! oh and it wasnt a staged shot, that was the real freak out!
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