Do you ever wonder how you would react in a crisis?Apparently I just stand there and stare at you while you go up in flames. On Sunday while celebrating B-days, Amber turned into America's next top model and posed next to the well lit cake(see below pic)
Instantly her hair went up in FLAMES. Thank heavens for Nancy's fast reflexes. She beat Amber down. While I stood frozen, mouth open. But I still managed to capture this picture.
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.