Don't I look lovely.I am so, so sick, Davy is so sick, Scott was sick and Harper had some crazy infectious rash. So life has been A W E S O M E! I still have to play blog catch up, but on another day. In the meantime I'm gonna kick it on the couch with my lil' bird and watch adventure time. Oh, and I greatly appreciated my Diet Coke Heather. You really know how to treat a girl.
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
8 comments:
Oh man.....hope you are feeling better soon Ruth. Rest as much as possible. And anyone who brings you a diet coke MUST be awesome. Hee-hee-hee.
Aww, you look more sick than I can remember being. Hope you are feeling better soonest.
You totally look hot! Seriously. I can't tell you're sick, other than you not smiling. I hope you all get better fast!
oh man, feel better soon. being sick is for the birds.
I'm sorry that all of you are so sick! I've been thinking of you and your family. I hope everyone gets better ASAP!
sick, ugh. get well very soon!
Hope you all feel better soon!
Post a Comment