I hope everyone had a great Christmas! We sure did.
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Davy's medical History
I am "the mom" to 3 boys and a little girl. Through taking a microarray test, we found out that my Davy girl has a rare chromosome deletion. I have written this out in hopes to find others who have any similiar conditions.
Davy has a microdeletion of 1p31.1-1p31.3. She has panhypopituitarism, a cleft lip and palate, Congenital heart defects(asd, vsd, pda and had a CoArc). She had a surgery for malrotation of the intestines, and a g-tube put in to feed her. She has GERD with esophagitis dysphagia. She is on multiple medictions that need to be given round the clock. Three of those she will need for the rest of her life. To read about her journey start here.
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6 comments:
I love all 3 boys faces in this picture!!!
PS
We had a wonderful Christmas!!!
MERRY CHRISTMAS!!!
Super cute photo! Love it! Glad you had a great Christmas! We did, too!
What a great picture! I can't wait to see you guys!
haha those faces are so funny on your boys. hope you're feeling good!
Did the kids try to copy the adults faces? Merry Christmas!
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